UNDERSTANDING
To George. Leave an email in the comments and I'll reply. When I got this 20 years ago I was told that what I had was virtually unknown. It took them 12 hours with six doctors in a trauma center to figure out what was wrong with me. They didn't expect me to live, but like you know, we both have lived. I looked today to see if you had replied. The short of breath thing related to the heart really worries people, especially if you are overweight. I think I should make a drawing of what is wrong with me, laminate it like a drivers' license and carry it in my purse. Pictures make more sense to people, since most people aren't even sure that their heart is on the left side (mostly) of the chest. I see a vascular surgeon for my SVCS. I'll look for your email along with some identifying information such as how this was diagnosed or something obscure like that to let me know you are George.
posted by creative side @ 3:20 PM
7 comments
7 Comments:
My email is gehiii06@gmail.com. I am glad to make contact with someone who I can relate to on this. It took me about 18 months of head scratching and confusion to get to the right doctor. My oncologist did not give it much consideration when I brought the idea. But I have evidence now. I was retired from the Army because of this. However it was undiagnosed. I am considering going back to the Army to ask for an increase in my disability rating. We will see.
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