LISTEN, PEOPLE! IT'S CALLED SUPERIOR VENA CAVA SYNDROME

I'm a pretty easy going kind of person. I don't anger or cry easily. I view the medical community as people who can help me and my job in that community as being one who makes life on the medical community easy. I recently needed a medical procedure which required an IV. As most Superior Vena Cava patients know, most of us don't have many veins and I am now down to one in my upper torso. I told this to the IV nurse, indicated exactly the placement of that vein and she ignored all of the help I could give her. To shorten a long story I ended up in sterile draping in a Cath Lab having a procedure done that I was not sure was okay for my condition or for that matter, with my doctor. I left in tears. I just wish that medical personnel could be educated about this rather rare condition and learn to listen. Perhaps if everybody that had Superior Vena Cava Syndrome could unite we could get some press so that some education could happen.

I hope that if you are reading this and have Superior Vena Cava Syndrome that you would respond. I would love to connect with someone like me, as I have never met anyone with this disease.